How To Cope With Caregiver Guilt

Just Breathe
Willie Nelson & Lukas Nelson

Life is what we make of it, right?  This is what we are told.  That if we push through time with the right amount of vigor, we can achieve our dreams with a full heart and a happy ending.  But rarely do these tales mention entrapment via circumstance.  Seldom do they reflect that choice is usually conditional. 

White Pumpkin Recipe 1: Curry pumpkin soup with barley, fresh tomatoes, scallions, cilantro and coconut milk.

White Pumpkin Recipe 1: Curry pumpkin soup with barley, fresh tomatoes, scallions, cilantro and coconut milk.

As caregivers we are often accustomed to squelched hope and rarely do these stolen dreams leave us clues for reparations.  However, a passage through loss, be it people or dreams, is never short on perspective.  Hindsight hurts for all the things we didn’t see before.  The pain doesn’t stem from whom or what is now gone; it’s a pain from recognizing what we had, and the failure then, to act.  It’s all the missed opportunities we can’t get back, and learning in the now, how to sit with forever. These are the seeds of our guilt and no one else can help us sow them.

White Pumpkin Recipe 2: Pumpkin paratha with cumin seeds and cilantro.

White Pumpkin Recipe 2: Pumpkin paratha with cumin seeds and cilantro.

Caregiver guilt is akin to a wet blanket and industry insiders are quick to call for its disposal. It’s heavy, burdening one’s mental health, and hardly the stuff of optimism that dominates the world of self-care.  But in truth that blanket, wet as it may be, is constructed of fibers, entwined with layers that represent so much more than what most outsiders perceive.  It’s a compass that governs our future selves.  It’s not to be cast off, but rather something to heed, as it provides a rare peek at our unmasked emotion.  It’s the truest reflection of the stranger we keep inside.

Sometimes the only thing that’s different is our perception of what ”is”.  And sometimes the only way to see that is to listen...
White Pumpkin Recipe 3: Warm white pumpkin salad with barley, kale, cilantro, pepitas, and lime.

White Pumpkin Recipe 3: Warm white pumpkin salad with barley, kale, cilantro, pepitas, and lime.

Guilt doesn’t have to imply flawed. It can be embraced for growth even when it doesn’t fit well with the mainstream social construct.  We can’t be afraid to feel guilt’s weights.  We’ve been carrying it around long enough for it to become us. It's in our fiber.  And to quote the song from this previous post: "it's in my honey, it's in my milk".  Why not give it pause and listen to what it’s saying.  There is more to it than just the burden of weight.  It has a message and needs some breathing room to develop it's voice. 

Just breathe… 

Things might begin to look different, even sound different, even when circumstance remains the same.

Just Breathe
Pearl Jam

Grieving The Loss Of A Partner

The Night We Met
Lord Huron

For those of you that have lost a partner... 

Not just any partner.  The partner.  The one that you can't let go of and in many ways you never will.  Cause why would you?  One is one and one only.  Don't let go.  Move along but never let go.  Such tragedies represent life's finest achievements. You won at love...

Dark night.JPG

Hold tight!

Recipes For Life

Sorrow
The National

It's exhausting to carry a heavy heart and never put it down. You start to wonder what it holds, examining which parts are disposable and unnecessary or even replaceable.  Everything is becoming murky.  Everything feels like a mix of tragedy and destruction in the wake of natural disasters, nuclear threats, terrorism, and politics.  Its never felt like a more important time to rise to the occasion and stand up for what you believe.  But what do you believe? 

We are all hurting.  Circumstances aside, I think it's safe to say there is a collective hurt but now what?!  I've been stewing in my own misfortune long enough to realize there is no rescue committee for your life and if you want to feel better you have to do better.  There is no recipe or instruction book on how to pick-up the pieces. You just start picking them up.  Put things together, create piles, salvage what you can and move on.  There is no greater leader right now than you and there is no better time than now.  Ready?

Curry Soup.jpg

PS- This is a green pea curry soup with house croutons and chives, topped with a drizzle of garam masala brown butter.  You don't need a recipe, just initiative. ;)

Survivorship

The Weary Kind (Theme From Crazy Heart)
Ryan Bingham

It's been two years now...

en·dur·ance

inˈd(y)o͝orəns,enˈd(y)o͝orəns/

noun

  1. the fact or power of enduring an unpleasant or difficult process or situation without giving way. "she was close to the limit of her endurance" synonyms: toleration, tolerance, sufferance, forbearance, patience, acceptance, resignation, stoicism

adjective

  1. denoting or relating to a race or other sporting event that takes place over a long distance or otherwise demands great physical stamina. "the annual 24-hour endurance race"
palm&I.jpg

You Are A Survivor

The bits of you that are broken, the bits of you that are damaged, do not see them that way.
Instead see them as slowly being filled with beautiful experiences and truths you have learned from the damage, the equivalent of lacquered gold.
I want you to remember you are not a broken thing. Instead, you are a human full of incredible and wonderful experience, made of the same things swords and diamonds are made of.
You are a survivor, my darling, and I salute you for everything you have been through, and for making the universe so proud, so very proud of what you have become.
~ Nakita Gill

Let's Build A Dream

Complete this sentence: "When I grow old I...".

It's common to hear "When I grow-up I..." but when was the last time you heard someone talk about their desires for old age. When was the last time you looked far enough into the future so you could see past retirement. I want to know about that version of you. More importantly I want to know more about that version of myself. So, instead of some goals for 2017 I'm setting them for 2047. Let's tack on 30 years and make a daydream for that person. 

When I grow old I'll have long white hair like my mom did. I will live in a rural, small cabin with a small footprint with my love who looks as handsome as the day we met even with the wrinkles. I will be a master gardener and a bee keeper. I will be able to get up off the ground without help and still split my own wood for the oven. The house will smell of fresh bread and the hours will pass with hobbies and craft that reflect a skill that can only be acquired with practice and time. I will have learned patience. I'll be both flexible and strong for my age. I won't be on any medications and I will cook for my friends. I'll take outdoor showers, make up my own sacred rituals, and connect more to the earth than ever before as it will await to receive me in rest.

Cheers!

Just #Koolbob

This is a round-up of some favorite shots of my dad from Instagram.  It's not as easy for me to make updates over here but with it being Father's Day, I figured it was the perfect time to archive some #koolbob moments. 

My dad.

My dad.

#koolbob. A veteran of the Korean War and now fights the war on dementia. As this Memorial Day passes I find that our family remains in hope that#veteran Affairs will hurry its decision to award him VA Benefits.
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We submitted an application back in January, and by March finally received notice that they had received it. And now, the last day of May, I find I am still holding my breath! "Hurry!!!! We need you! He needs you!"
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If a picture speaks a thousand words then there are a thousand more in this photo that are lost behind the glamour of social medial. My dad is freshly shaven and styled to perfection which is honestly a rare treat. He is handsome and forever cool and I think the glimmer of what is left of him shines through right here. But he is suffering daily. He is in anguish of the loss of his mind and his independence. It's a painstaking effort to uphold dignity to the caliber that this #soldier deserves but he deserves it! On this #memorialday I continue to hold my breath, cross my fingers, and pray #veteranaffairs REMEMBERS him!

UPDATE: On this Father's Day, June 19, 2016, we continue to wait...

The Man.

The Man.

People always commend me for undertaking #caregiving but what they don't realize is for one, they give me too much credit and two, they seem to neglect their own capacity to provide #love.
❤️
#motivation to be a #caregiver wasn't a random calling, hollering at me from a street corner. It was more like a nagging voice reminding me I had the ability to make a difference yet waiting patiently for me to act.
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If you had the capacity to change someone's life for the better, would you do it? Of course you would! Because we are not different you and I. Separated by circumstance maybe, but connected in#humanity and a belief that when the time comes for you to step-up, you will. And you will. It's not a question of if? It's just a matter of when. And when "when" comes, you will be relieved to learn that you didn't make the difference. You are the difference!
❤️
FYI: Friends of #koolbob do not worry. This picture was taken months ago and he has quite recovered;)

The Myth.

The Myth.

Behind every good#caregiver is a pot of #coffee. And in my case, this guy, bringing it to me every single morning while I am laying in bed!

The Legend.

The Legend.

Shave and a haircut, two bits!

That's all for now.  I hope all the dads out there are having a great day!